LOCATION

Democratic Republic of the Congo, Madagascar, Congo-Brazzaville, Cameroon

LOCAL PARTNERS

CECFOR (DRC), IMRA (Madagascar), GEDREPACAM (Cameroon)

PROJECT LAUNCH

2014

 IECD – © 2017

Affiah is a child with sickle-cell disease. Discover her story in the documentary filmed in DRC (on our website), the aim of which is to inform local communities about the disease and fight discrimination. A short version aims to encourage public authorities to become more involved in this public health issue.

Tackling Sickle-cell disease in central Africa and Madagascar

1 rst

genetic disease in the world

50 % à 75 %

of children who are suffering from the disease will not see their fifth year

Sickle-cell disease: what is it ?

© 2017 IECD

Sickle-cell disease is the leading genetic disease in the world. It affects the blood and causes intense pain, anemia and an increased risk of infection.

In Central Africa and Madagascar, about 20% of the inhabitants are healthy carriers of the sickle-cell disease gene. Every year, almost 2% of newborns are affected by the disease and 50 to 75% of them die before they are five. Those with sickle-cell disease also suffer from social exclusion because of a lack of awareness among the population about the disease.

However, a neonatal test and early treatment can help to improve life expectancy and their living conditions.

The IECD Program

The program aims to reduce mortality among children suffering from sickle- cell disease and improve their living conditions through support for different healthcare structures on the basis of the following lines:

– the screening of children at birth;

training of healthcare workers on the management of sickle cell disease;

monitoring and management of sickle-cell disease patients;

educational therapy of the parents of sickle cell disease patients;

advocacy with health authorities to make sickle cell disease a public health issue;

strengthening of the Network Study of Sickle Cell Disease in Central Africa (REDAC) to promote scientific exchange and share best practices.

THE REDAC CONGRESS (Network Study of sickle-cell disease in Central Africa) – 25/27 May 2016 – Kampala (Uganda)

The congress, organized every two years, is becoming increasingly famous: in 2016, it brought together more than 500 participants from 18 countries in Africa, Europe and America. This high attendance bears witness to the importance of sickle-cell disease in terms of public health. Apart from sharing experiences, which improves practices when caring for the sick, this international congress offered a great opportunity to discuss the latest research and new therapeutic data. Thanks to the presence of several African health ministers, it was also an opportunity to continue to appeal for more attention from health authorities with regard to the situation of patients.

Cameroun – Appui aux petites entreprises

Congo-Brazzaville – Appui aux petites entreprises

LIBAN – Appui aux petites entreprises

Cameroun / Côte d’Ivoire – Le projet TRANSFORM

Cameroun – Le projet APONH

SYRIE – Cinq centres de formation pour les déplacés internes et autres personnes vulnérables

Congo-Brazzaville – Programme d’Appui aux Structures de Santé (PASS)

Côte d’Ivoire – Former les jeunes ivoiriens et ivoiriennes aux métiers de l’électricité

Côte d’Ivoire – Appui aux petites entreprises et projet MPE

Madagascar – École hôtelière La Rizière à Fianarantsoa

Thaïlande – L’école hôtelière HCTC de Mae Sot

LIBAN – l’éducation inclusive pour que les enfants en situation de handicap intègrent les écoles régulières

TERRITOIRES PALESTINIENS – un centre de remédiation scolaire pour des enfants et adolescents en décrochage scolaire

LIBAN – les centres éducatifs accueillent les enfants réfugiés syriens

Madagascar – Appui aux petites entreprises

Maroc : Formation d’aide à la personne à autonomie réduite (FAPAR)

Le réseau Méditerranée Nouvelle Chance

Myanmar – Appui à 2 centres de formation en hôtellerie-restauration

La Plateforme régionale ASSET – H&C en Asie du Sud-Est

Madagascar – Programme CERES : Centres d’Education et de Renforcement Scolaire

Madagascar – Programme SESAME : Soutien aux Études Supérieures et Accès à un Métier Porteur

République Démocratique du Congo – Appui aux petites entreprises

SYRIE – Aider les jeunes entreprenants à créer leur propre activité (Programme BRIDGES)

Territoires palestiniens – Appui aux petites entreprises

Vietnam – Appui aux petites entreprises

Les écoles de boulangerie-pâtisserie française (Vietnam et Myanmar)