Affiah leaves in the working-class neighbourhood of Kinshasa (Democratic Republic of the Congo). She is suffering of sickle-cell-disease, genetic disease which touches 2% of children. Every trimester, after school, she goes to the Dr Kitenge in the hospital center of Monkole, about one hour and a half away. Affiah’story is the story of several million children which more than a half will not reach the age of 5!
Sickle-cell-disease is the first genetic disease in the world. It affects the blood and manifests with extremely painful crisis, an anaemia and an increased risk of infections. Due to a big lack of political awareness, the majority of diseased has not received an adequate care. People with sickle-cell-disease are also affected by stigmatization and social exclusion because of a lack of information of the population about the disease. However, an early diagnosis and treatment can reduce by 40% the mortality rate and significantly improve the living conditions of the patients.
Since 2006, IECD offers support to African countries in the fight against Sickle-cell disease, because it is particularly high in those countries and badly supported. This documentary, realized with the support from the Agence Française de Développement, the Pierre Fabre Fundation and the International Cooperation of Prince of Monaco’s government, aim at disseminating the disease, urge mothers to early screening of their children and fight discrimination. The film is available in two versions: one long version (13:38, above) intended for a general public and another short version (04:20, below) alerting public authorities on the importance to start national policies up to the task.
We are also counting on you to become ambassador for the fight against Sickle-cell disease, through a large diffusion of those films.