Sickle-cell disease is the number one genetic disease worldwide, including in France with 50 million carriers of the trait. In Africa 50% to 75% of children who are suffering from the disease will not see their fifth year, dying in excruciating pain. It is also referred to as the disease of broken bones as the pain of an attack resembles the crushing of bones. There is no cure for sickle-cell disease, but treatment of those affected considerably reduces the number of bouts of sickness and the number of complications, particularly resulting infections. Screening at birth allows children to be treated early and thus massively lowers the rate of infant mortality from this disease. The IECD is the first international solidarity organisation to get involved in the fight against sickle-cell disease through its local medical partners. It pushes forward research and facilitates the exchange of experiences in order to improve the screening and treatment of the disease’s victims. Through its support of the Network Study of Sickle-cell Disease in Central Africa and with the media profile of a film it hopes to gain increasing commitments from governments and influence decision-making in health politics.
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