GEDREPACAM (Research Group on Sickle-Cell Disease in Cameroon) and the CPC (Pasteur Center in Cameroon)
During the school fete, we organized a minute’s silence for a first-year student with sickle-cell disease who had died recently A collection was made among his first year classmates to help the family pay for the hospital fees. After the death of our classmate from sickle-cell disease, some students contacted the Health Club for more information about the disease. Since we had benefited from training on sickle-cell disease from the IECD team last year, we were able to answer their questions. »
President and Vice-President of the Health Club at the High School in Ekounou
CAMEROON – Improvement of care for people suffering from sickle cell disease
The program to improve care for sickle-cell disease was extended to Cameroon in 2015 in partnership with the GEDREPACAM and the Pasteur Center in Cameroon. Developed initially with four healthcare structures in Yaoundé, it was extended to Douala with three other maternity units. The IECD has enabled the setting up of several actions: systematic screening on birth in seven maternity units (pilot action), training of medical staff to diagnose and care for patients, support for families affected by sickle-cell disease and the setting up of preventive actions among a young audience.
EDUCATIONAL TALKS AND PRIMARY EDUCATION
A sick child is a drama in a family: in order to help parents and sickle-cell disease patients to overcome their difficulties, therapeutic education sessions, ″educational talks″, ensured discussions, advice and better quality of care for patients. In 2016, primary prevention started in high schools: students, future parents were invited to understand the disease and how it is transmitted. It was also the opportunity for students and teachers to accept another person’s illness, avoid stigmatizing children with sickle-cell disease and set up measures to help their integration.
ENCOURAGE PARENTS TO COLLECT SCREENING RESULTS
Healthcare centers work on finding as many screened sickle-cell patients in order to integrate them into the early treatment program. To encourage parents to come and collect their results, an SMS campaign was launched at the end of 2016: this system allowed the transmission of results to parents to be doubled.
- 13,000 children screened.
- 100 people treated.
- 19,000 people informed.
- 160 healthcare professionals trained.